ICCon - The Inherited Cancer Connect partnership

Inherited cancer syndromes are individually rare but collectively important as they impose a significant impact on affected families and national health care costs

A collaborative approach is essential to improve targeted cancer prevention, screening, treatment, and research in this group of people and their families. The purpose of the Partnership is to: 

  • Provide a cohesive research network for Familial Cancer Centres (FCCs) operating within Australia, transforming their clinical practice into a research resource 

  • Create the mechanism for translating and evaluating research rigidly fixed on outcomes to improve the health of people with a hereditary predisposition to cancer 

  • Create an environment to facilitate research collaborations and train the next generation of familial cancer researchers 

ICCon (Inherited Cancer Connect Partnership) will use a collaborative approach over five years (2013-2017) to specifically address several Research Priorities in the familial cancer field: 

  • Research Priority 1: Develop a national infrastructure to connect the inherited cancer community, including clinicians and researchers 
  • Research Priority 2: Develop a national program to identify people at risk of heritable cancers 
  • Research Priority 3: Improve the accuracy of inherited cancer risk predictions 
  • Research Priority 4: Improve the knowledge of and access to effective cancer risk management strategies by:  
    • National implementation of eviQ guidelines,  
    • Optimisation of medical prevention strategies for cancer 

Funding 

  • Cancer Council NSW (New South Wales) 

Principal investigator 

  • Associate Professor Gillian Mitchell 

Contact details 

Ms Lyon Mascarenhas 

  • Email: This email address is being protected from spambots. You need JavaScript enabled to view it. 

Project group 

Project status 

  • Ongoing